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On World Neurofibromatosis Awareness Day, UHN Foundation announces an anonymous gift of $11 million in support of Neurofibromatosis (NF) research. NF is a genetic disorder affecting approximately one in 10,000 Canadians. The Elisabeth Raab Neurofibromatosis Clinic was established in 2015 at Toronto General and Toronto Western Hospitals, part of the University Health Network (UHN) and is the first, and remains the premier, clinic of its kind in Canada. It offers clinical care, clinical research and basic science research for adults living with Neurofibromatosis. Overseen by Co-Directors Dr. Vera Bril and Dr. Gelareh Zadeh, the Clinic provides the multidisciplinary care required for Neurofibromatosis under one roof. As patients often have six to nine doctors depending on the complexity of their condition, UHN’s breadth of specialists means the Clinic is a one-stop shop for most patients.
“The generosity of this anonymous $11 million gift will enable further research to better understand this relatively rare condition and provides hope for adults living with Neurofibromatosis,” said Louise Aspin, Senior Vice President and Chief Development Officer of UHN Foundation. UHN Foundation raises funds for research, education and the enhancement of patient care at Toronto General and Toronto Western hospitals, Toronto Rehabilitation Institute and The Michener Institute of Education at UHN. Together with our donors, we are helping UHN pursue the knowledge that makes all our lives better. For more information, visit UHN Foundation.
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